Meet Our Family Engagement Coordinator
Meet our Family Engagement Coordinator, Edgenie Bellah. Edgenie has been with our Project since 2002 and uses her various experiences as a parent of sons with disabilities and years of experience working in rehabilitation to help support families of children who are deafblind. Edgenie is passionate about family engagement and has been very active with family organizations at a state and national level for many years.
Want to connect with Edgenie? You may email her at email@example.com or phone her at 512-206-9423.
What Does She Do?
Edgenie is available to work with individual families on family life as well as matters related to education, accessing medical and state agency services. This includes connecting with other families with children who are deafblind. Edgenie frequently partners with our education consultants when they meet to develop programming at a local level.
Our program believes that parents are the experts on their child. Participating in relevant training -including learning more about deafblind matters- and gathering information from various sources helps families build their confidence and advocacy skills. Edgenie helps family members access training on a variety of topics and provides training to groups on family engagement. She was instrumental in the development of our successful Family Engagement and Leadership trainings that have created new and enthusiastic leaders advocating for deafblind services in schools and in the community.
Edgenie collaborates with a variety of family organizations at the state and national levels. At the state-level her collaboration includes such organizations as the Deaf-Blind Multi-handicappped Association of Texas, Texas Chargers, Texas Hands and Voices, Deaf-Blind Camp of Texas, and Texas Parent to Parent. She contributes to the Outreach Programs newsletter, Texas SenseAbilities, especially on articles about and for family members.
At the national level Edgenie is on the board of the National Family Association for Deafblind serving on the Affiliate Network Committee and Policy, Information, and Education Committee. She had the pleasure of being the local host for the 2012 and 2016 NFADB Family Leadership Symposium. Edgenie was Product Manager for the video on deafblind awareness, Moments of Joy. She has also worked with the National Center on Deaf-Blindness on such projects and their Family Engagement Initiatives, Open Hands, Open Access Intervener Learning Modules.
Recently Edgenie has helped launch Texas Families Together online gatherings for adult family members with children and adults who are visually impaired or deafblind. This special meeting takes place weekly for our families and is accessible in both English and Spanish.
Family-to-Family Communities Project (F2FC)
“I love knowing that there are others like me! It’s wonderful to not to feel
so isolated” (parent)
Questions? Contact Carol Darrah firstname.lastname@example.org or Edgenie Bellah at email@example.com
Texas Mental Health Symposium for Deaf/Deafblind Youth
For registration and more information and registration, visit their website.
Texas Families Together
Join us on Tuesdays for Texas Families Together! Participants: Exclusively for adult family members with children and adults who are visually impaired or deafblind. *We appreciate professionals honoring this families-only event.
Find more information and login information at: https://www.tsbvi.edu/tx-families-together