Family Engagement

Meet Our Family Engagement Coordinator

Edgenie Bellah
Edgenie Bellah, Family Engagement Specialist for the Texas Deafblind Project

Meet our Family Engagement Coordinator, Edgenie Bellah. Edgenie has been with our Project since 2002 and uses her various  experiences as a parent of sons with disabilities and years of experience working in rehabilitation to help support families of children who are deafblind. Edgenie is passionate about family engagement and has been very active with family organizations at a state and national level for many years.  

Want to connect with Edgenie? You may email her at bellahe@tsbvi.edu or phone her at 512-206-9423.

 

 

 

 

 

 

What Does She Do?

Consultation

Edgenie is available to work with individual families on family life as well as matters related to education, accessing medical and state agency services. This includes connecting with other families with children who are deafblind. Edgenie frequently partners with our education consultants when they meet to develop programming at a local level. 

Training

Our program believes that parents are the experts on their child. Participating in relevant training -including learning more about deafblind matters- and gathering information from various sources helps families build their confidence and advocacy skills. Edgenie helps family members access training on a variety of topics and provides training to groups on family engagement. She was instrumental in the development of our successful Family Engagement and Leadership trainings that have created new and enthusiastic leaders advocating for deafblind services in schools and in the community.

Collaboration

Edgenie collaborates with a variety of family organizations at the state and national levels. At the state-level her collaboration includes such organizations as the Deaf-Blind Multi-handicappped Association of Texas, Texas Chargers, Texas Hands and Voices, Deaf-Blind Camp of Texas, and Texas Parent to Parent. She contributes to the Outreach Programs newsletter, Texas SenseAbilities, especially on articles about and for family members.

At the national level Edgenie is on the board of the National Family Association for Deafblind serving on the Affiliate Network Committee and Policy, Information, and Education Committee. She had the pleasure of being the local host for the 2012 and 2016 NFADB Family Leadership Symposium.  Edgenie was Product Manager for the video on deafblind awareness, Moments of Joy.  She has also worked with the National Center on Deaf-Blindness on such projects and their Family Engagement Initiatives, Open Hands, Open Access Intervener Learning Modules. 

Recently Edgenie has helped launch Texas Families Together online gatherings for adult family members with children and adults who are visually impaired or deafblind. This special meeting takes place weekly for our families and is accessible in both English and Spanish.

Family-to-Family Communities Project (F2FC)

Family to Family Connections Logo
Family to Family Connections Logo

“I love knowing that there are others like me!  It’s wonderful to not to feel 

so isolated” (parent)

Questions?  Contact Carol Darrah cdarrah@uga.edu or Edgenie Bellah at bellahe@tsbvi.edu

Texas Mental Health Symposium for Deaf/Deafblind Youth

Texas Mental Health Initiative for Deaf Youth Logo
Texas Mental Health Initiative for Deaf Youth Logo

For registration and more information and registration, visit their website

Texas Families Together

Join us on Tuesdays  for Texas Families Together! Participants: Exclusively for adult family members with children and adults who are visually impaired or deafblind. *We appreciate professionals honoring this families-only event.

Find more information and login information at: https://www.tsbvi.edu/tx-families-together

Image shows the legs of 2 adults and one child wearing colorful shoes and socks. The text on the image reads Image shows the legs of 2 adults and one child wearing colorful shoes and socks. The text on the image reads , “From TSBVI Outreach – Texas Families Together, Tuesdays at 4 PM, https://www.tsbvi.edu/tx-families-together”.[/caption